ZEBRA DAY @ LINDISFARNE ANGLICAN GRAMMAR SCHOOL
We are holding a Zebra Day at Lindisfarne Anglican Grammar School!
Zebra Day was a concept created by our family after we received the devastating news that our youngest daughter had been diagnosed with a rare primary immune condition called Common Variable Immune Deficiency CVID.
The link with Zebra’s is that no two Zebra stripes are the same and neither are the symptoms of the sufferers of CVID. Because it is a rare condition there is little or no research into it and as a family we saw a need to raise awareness and funds for this was a fantastic way to help Emily and others suffering from CVID. But we are only one family and it takes a lot to get support and awareness out there and time and energy that could be focused on Emily’s best health and treatment.
For more info on Emily’s story visit: www.allergyimmunology.org.au/personal-stories/cvid-emily-s-story
So far we have arranged Zebra Day to be held at several school across the Tweed region with all of the funds going to The Immune Deficiencies Foundation Australia (IDFA), a not-for-profit health promotion charity raising awareness and caring for people who have Primary Immune Deficiencies (PIDs). IDFA business details.
There is no cure for CVID it can be mild, severe and in some cases fatal.
The main issue is susceptibility to infections with an immune system similar to a person undergoing chemotherapy on a daily basis. If not diagnosed early, these organs become permanently damaged. Even with treatment, the damage cannot be reversed. Many people with PID also have autoimmune conditions such arthritis, lupus and bowel disease.
We would love the local community to help promote this day so it becomes a national event in schools around Australia!